Abstract People with Down’s syndrome have a higher risk of developing dementia, especially Alzheimer’s disease. This is because people with Down syndrome have an extra copy of chromosome 21, which can lead to a buildup of plaque in the brain. By age 40, most individuals with Down syndrome have brain changes associated with Alzheimer’s, including… Read More
Webinar: Exploring the experiences of LGBTQ+ people living with dementia
Abstract It is increasingly appreciated that one’s ‘social location’ (i.e. age, gender identity, socioeconomic status, ethnicity, living context, sexual orientation, etc) will affect their experiences of living with dementia. For some, this may result in inequalities and inequities experienced throughout the dementia care pathway, from pre- to post-diagnosis. Whilst we know that dementia may pose specific… Read More
Webinar: “You can’t do that in dementia care” – meeting the challenges of inclusive dementia care.
Abstract At least 25,000 people from minority ethnic communities are living with dementia in the UK. However, there are likely to be important differences in the services that people from these communities receive compared to their white-British counterparts. For instance, people from many communities are significantly less likely to receive a diagnosis of dementia and… Read More
Webinar: Food Glorious Food
Abstract This webinar introduces the NIHR-funded Food Glorious Food project, offering early insights from its realist evaluation. People living with dementia face a heightened risk of malnutrition and dehydration. However, food plays a far more significant role than nutrition alone – it can influence psychosocial wellbeing, foster a sense of citizenship, and support personal and… Read More
ASPIRE: A Model of Support for Children in Wales with a Parent in Prison
Abstract The ASPIRE Project (Actioning a Schools & Prisons Independent Research Evaluation) In July 2023, the Welsh Government commissioned the ASPIRE Team for a 12-month period to provide options and considerations for a national model of support to improve wellbeing and educational outcomes for children affected by parental imprisonment in Wales. The ASPIRE team is… Read More
Understanding suicide risk in parents caring for disabled children
Presenter: Dr Siobhan O’Dwyer and Dr Dan Burrows Presenters Dr Siobhan O’Dwyer is Associate Professor of Social Care at the University of Birmingham. She has led research on unpaid care for the last 15 years, including studies in Australia, the UK, and the Netherlands. Her research has informed policy and practice, and inspired critically acclaimed… Read More
Webinar: Educational pathways and outcomes for care-experienced children: a population-scale data linkage study
Presenter: Dr Emily Lowthian, Lecturer in Education, Swansea University Abstract “Children who have relatively short periods of care – and/or who experience care in early or late childhood – commonly face the most significant deficit in their educational attainment compared to those with longer and more stable care experiences. Explanatory analyses suggest suspensions, exclusions and… Read More
Webinar: Ageing with Learning Disabilities
Presenter: Professor Sara Ryan Abstract People with learning disabilities live with many absences across their lives due to epistemic injustice and ignorance. These absences include respect, employment, sexual intimacy, parenthood and, as we found in our recent study Growing Older, Planning Ahead, ageing. I discuss these findings and reflect on the role of research in… Read More
What About Me? People with learning disabilities living on the edges of support: what is it like, and what needs to change?
Presenter: Dr Edmund Coleman-Fountain, University of York, and self-advocates involved in this project Abstract This webinar will explore the “What About Me?” project. Funded by the NIHR (Research for Patient Benefit), the project investigates what it is like to be a person with learning disabilities who relies on unfunded support. The project has been co-produced… Read More
Webinar: The voice of young people with learning disabilities and autism in supported employment
Presenters: Andrea Meek and Dr. Elisa Vigna, National Centre for Mental Health at Cardiff University and Gerraint Jones-Griffiths, Learning Disability Wales/ Honorary Associate at Cardiff University. Abstract This presentation will explore the importance of partnership working in Supported Employment, based on Engage to Change, a 7-year national project supporting young people aged 16-25 with a… Read More
