Gweminar: Sut i gyd-gynhyrchu ymchwil ar ddiwedd oes gyda phobl ag anabledd dysgu

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Byddaf yn sôn wrthych am ddau o’n hastudiaethau a ariennir gan yr NIHR: Prosiect Victoria a Stuart (sy’n cynnwys cyd-gynhyrchu pecyn cymorth o adnoddau a grëwyd ar y cyd, i helpu pobl ag anabledd dysgu i gymryd rhan wrth gynllunio gofal diwedd oes) a Prosiect DAPPLE (sy’n edrych ar fodelau o gynllun darparu gofal diwedd oes i bobl ag anabledd dysgu). Roedd y ddau brosiect yn cynnwys grwpiau o bobl ag anabledd dysgu.

Yn y sesiwn hon, byddaf yn defnyddio recordiadau fideo o’r grwpiau hyn a fydd yn dangos i chi:

• Sut y gwnaethon ni greu pecyn cymorth Victoria a Stuart (cymerodd bron i 200 o bobl ran weithredol, gan gynnwys 36 o bobl ag anabledd dysgu)
• Sut mae grŵp cyd-gynhyrchu DAPPLE yn gweithio gyda’i gilydd i ystyried canfyddiadau’r astudiaeth

Byddaf yn sôn am egwyddorion pwysig cyd-gynhyrchu, a pham ei bod yn hanfodol ein bod yn cynnwys y bobl sy’n bwysig. Gallai hyn roi syniadau i chi fynd yn ôl i’ch gweithle – p’un a ydych chi’n gwneud ymchwil neu’n gweithio gyda phobl ag anabledd dysgu, ai peidio!

Mae’r pecyn cymorth yn rhad ac am ddim i’w lawrlwytho yn Cynllunio Gofal Diwedd Oes | Prosiect Victoria a Stuart

Mae prosiect DAPPLE ar y gweill: Gofal lliniarol, Gwasanaethau anabledd dysgu, gofal diwedd oes, Prosiect Dapple | gofal diwedd oes i bobl ag anabledd dysgu.

Biography

Irene Tuffrey-Wijne is a Professor of Intellectual Disability & Palliative Care at Kingston University, London. She leads the KIND (Kingston University Intellectual Disability) Research Group, which includes researchers with and without learning disabilities who do research together about death, dying and bereavement. The team has won several national and international awards for their work.

In the 1980s Irene lived and worked in L’Arche London (a community with people with learning disabilities). In the 1990s she worked as a nurse at Trinity Hospice, London. Since 2001, Irene has led a programme of research and development focusing on learning disability, bereavement and palliative care. She has published widely and presented her work in the UK and across the world, and is recognised as the leading international expert in the area of palliative care for people with learning disabilities. Inclusion of people with learning disabilities as study participants and as salaried researchers is a key part of her work. There is growing international interest in the KIND Research Group’s methods and development of creative ways to enable inclusion in research.

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• Irene Tuffrey-Wijne
• The KIND Research Group